Three Years Home

It is hard to remember what it was like three years ago without this precious treasure sitting at our table.  What a tremendous blessing this girl has been.  She has her Gotcha Day the same month as her birthday which is hard for a girl who has been waiting her turn as her three sisters celebrated their days in April.  She was thrilled her day was here.  She carried the calendar icon of momma getting her around all month waiting until the 25th.  She requested ice cream instead of cake so we whipped up some homemade vanilla and put her favorite M and M's on top.  She was pleased!  We couldn't love this very special girl..our Amazing Molly...any more!  She is one incredible, fun loving daughter who has added so very much to our family in the last three years.  Just look at that face...She is always smiling..always quick to love..always silly...just a pure JOY to be around.  We love you Molly and are grateful to be your family!

Shriner’s Christmas Party

On a Saturday in December, Daddy and Jilly headed to Special Olympics and we headed to a Christmas party.  With so many little ones, it is becoming more necessary to split up as they have many activities.  I am so thankful to not have to go at this parent thing alone.

Molly is a Shriner's Hospital patient.  We are grateful for the free care this organization provides our sweet Molly at their hospital in Minneapolis.

We also are so thankful for all the other special ways they serve our family throughout the year.  Every year, they have a Christmas party for the patients, and it never disappoints.

They had a live band with brass and woodwind instruments.  It was loud, but this girl slept anyway.  I think she was unimpressed with the festivities. 😍

Molly was all smiles though because she knew she would receive a gift, and she was waiting with anticipation!

We met some some amazing patients and their families this year who are served by this charity.  I am always so thankful for the time I get to spend with other families who are parenting special needs kiddos.  The fellowship is always sweet.

Molly's Hearing...an Update

Last week, this girl spent 90 minutes in an audiology appointment at the U.  In fact, she is spending 90 minutes every other week.  We had to wait about twenty minutes without her aids as they were checked and tuned up.  She kept pointing to her ears and asking "my ears".  When her aids were reprogrammed and given back to her, I popped them in while we were in the lobby and she declared..I HEAR!  There wasn't a dry eye in the house.  This sweet, tiny, little peanut has a way of capturing the hearts of all those around her.  We are spending so much time in the audiology booth because it seems that our Molly is loosing ground as far as her hearing goes.  If the audiograms from the summer are correct, her hearing is going pretty fast.  I have to admit...I am crushed that she might loose the little hearing she has, and I am perplexed by the test results because it seems that she is actually hearing more environmental sounds lately than before.  This girl is complicated that is for sure, and we just aren't sure what is going on.  Her ABR results when her loss was diagnosed was all over the place and quite unusual.  We don't exactly know what is causing her loss, and she seems to have both sensory neural and conductive components.  We haven't yet found a genetic component, and no one has ordered a CT scan to check for missing bones.  Missing bones is a good guess since our dear girl is missing bones in her arm, but it is just a guess.  So we are throwing out new diagnosis, doing lots more testing, and scratching our heads.  Might she loose all her hearing..I hope not.  Might she benefit from an implant..maybe.  Might she have auditory neuropathy..maybe.  There are so many unknowns right now, and so this momma prays.  I might worry a teensy bit too, but mostly I am doing my best to leave this at the foot of the cross as I know that God has been mighty in my little peanut's life so far so I trust Him with her.  I want her to keep her hearing with aids, develop intelligible language, and live a life that shines brightly for our beloved Savior so that is what I am praying for her.  We would certainly appreciate your prayers as we explore this over the next few months.  We have a couple of doctor's appointments and I am hoping someone will be willing to dig deeper biologically to see if we can find anything.