Thursday, August 20, 2015
Medical Stuff Galore
The dental cleanings, orthodontics, periodontics, orthopedics, and many, many specialist appointments that are necessary right now have meant that I am living in the medical realm. I try to be thankful on a daily basis that we have access to such high quality medical care that is so readily available to our kiddos, but I am looking forward to a day when I don't have to talk to a doctor every other day. Last week, we had our appointment at Shriner's so Molly and I headed up to see the docs there. It was a very, very long day as it is a four hour drive from here. The local Shrine drove us up and back which helped so much. We got our peanut's first ever x-rays of her beautiful hands and arms, saw the hand surgeon, and the pediatrician. Miss Molly showed them all she could do, and, as usual, most were amazed with her. The hand surgeon recommended that we leave those beautiful hands just as they are for now as making them work differently really wouldn't benefit her. She also recommended that we get our babe into the genetics clinic ASAP as having a missing radial bone can mean some other serious medical stuff. I was well aware of that when saying yes to bringing home this sweet girl, and I have been trying to get her into the genetics clinic for three months. There is a fifteen month wait for an appointment. So, armed with a plea from the hand surgeon, I set out this week to make something happen. I began at the U hand clinic thinking if Molly was their patient they might have some pull to get her in at the U genetics clinic. When trying to make an appointment with the hand clinic, they said I needed to first be seen at genetics right away. DUH? Then, I asked if they could help me get in because I wasn't getting anywhere. I was passed around all morning, but finally given a lead to the geneticist on call. My doc consulted with them, and pleaded our girl's case. He ordered some tests based on his better understanding of this gene stuff and promised to get us in the next two or three months. This was much better than the original fifteen months we were quoted, and, I was even happier with the screening tests to help check for scary medical stuff while we wait, so I rejoiced. Today though, my phone rang and it was the golden hall of genetics offering us an appointment at the end of this month because they had a cancellation! WAHOOOO was all I could think when answering that phone call. I am anxious to know what our girl may or may not be up against inside that precious little body of hers. I don't look forward to blood draws or all the complicated vocabulary, but I am so very thankful to have this appointment on the books. Soon, we will hopefully know all we can about our precious treasure!