It has been several weeks now since we met our daughter's extra chromosomes. Trisomy 9p is the official declaration given.. the nuts of bolts of why she is who she is today. To us, we don't see her as anything more than perfect, valuable, and created by a maker who makes no mistakes. He intended for her to be put together just as she is, and to be our daughter. I could go on and on about just how miraculous she was made. I don't think Daddy has even read the pamphlet about the rare designer chromosomes our daughter has because, as he said, she is first of all just our daughter. It makes no difference to us that her chromosomes are out of the ordinary. On the contrary, most days we feel as if we have won the family lottery being able to parent these extraordinary daughters we have been given by the Lord. The geneticist at the U, who has seen all our girls and is very familiar with our beautiful family, said that we should put no limits on what our baby girl might accomplish because look at all she has done already. I agree! God knows what this time on earth for her will bring, and all that she will do to change this world to bring Glory to Him who created her. We are just along for the ride, and couldn't be more thrilled to call her our precious, treasured daughter.
Sometimes a girl plays so hard, she just falls asleep in the middle of her destruction. I love having a baby to mess and destroy all within her reach again. This girl is doing some serious exploring this week and we are thrilled to walk through all her piles.
Here is where I overload you with memories of our annual week at Gull Lake Ministries. If you are looking for an amazing, God centered place to spend your family vacation, you couldn't do better than this place. We have been going for nine years, and it never disappoints. We love it!
The first night was a baseball theme. My little girls were darling in their gear.
The theme night dinners are always a memory maker for my girls.
Love that my big girl is able to participate so fully as the dining hall used to scare her out of her wits. She has come such a long way, and loves everything about Gull Lake Ministries.
Our little baseball tolerated the noise and action pretty well too.
The best part of the week is spending it with our dear friends. There is much more to come as I can't resist publishing these memories.
You know going into adopting a child with special needs that there will be a diagnosis. You know they will have special needs, and you choose to welcome that. Having done this four times now, you know there is no way to know everything about what your child will have when they are finally home. You choose a child not a diagnosis, and you walk through the dark, by faith, trusting that God will supply your every need to care for them as they grow. I have done this all before. I know how it goes, but when the CDD at the U called yesterday saying that Ellie's micro array test had turned up something..I started to panic. Irrational thoughts swirled in my head about what it could be, and fear took over in my heart. Immediately, I began going through horrible what if's. What if she doesn't live until adulthood..what if she has some serious medical need that is life threatening..what if we have to walk through some scary medical stuff.. Then, the most beautiful thing happened. As I was spiraling into panic, my dear Anna Mei came up to me and out of nowhere said, "Momma, I want you to read me a bible verse right now." She hasn't ever done that before. I began to read passages aloud, and, as I did, the panic and fear I was feeling subsided. My sweet six year old treasure listened to the Holy Spirit, and asked, at just that moment, to be read to from His word..which was just exactly what her momma needed to do to calm the fear in her heart. How I love that my children minister to me. I am grateful to God for the gift of my precious daughter who, because she knows Christ as her Savior, is filled with the living God who sent her to request that I read her the Bible at just the time I needed to be in the word myself. What a treasure we have in His word if only we pick it up and read. I am so thankful for the reminder of that from my beautiful six year old girl when I most needed it.
More to come about our precious treasure, Ellie Grace, and her designer chromosomes. She is a rare beauty, indeed, designed very uniquely by a God who very intentionally made her perfectly.
I am a Christ follower, wife of 20 years to my best friend, and a stay at home momma to five amazing daughters. I am currently waiting for one precious special needs treasure to come home from China. I am passionate about the orphan and special needs adoption. I love to teach God's word, am involved in youth ministry alongside my dh, and love,love, love cooking. Above all, I desire to serve God and surrender my life to His call.